One of the surprises of the job of being an ICU nurse for me was how often I had to restrain my patients. Almost every patient that is on a ventilator has both arms tied. The exceptions are those that are not physically able to move (organic restraints) and those who have been intubated for some time and have demonstrated trustworthiness. The second group are often subjected to the nurses whims. If the night nurse for instance sees such a patient scratch his nose at the beginning of the shift, she may decide that it is not worth the risk and she may tie the patient up for the night and be done with it. There are also quite a few patients who sundown. They may be okay during the day and then become erratic at night.
Then there are the so-called ‘social’ intubations. These are usually large men who come into the ER intoxicated and in need of treatment. Their belligerence interferes with their treatment and more and more sedatives are prescribed. At a certain point the doctors begin to worry that when they do finally fall asleep they will stop breathing because of all the sedation. A-bing’n-a-bang’na and they are smoking plastic.
Patients who have recently had feeding tubes inserted through their noses also usually need to be restrained. It takes a fair amount of self control for a patient to not pull them out. I once watched as my large male patient wiggled down in bed to try to get enough slack on his restraints to get his hand around his NG (naso-gastric tube). “Sir, please do not do that,” I said. “I got to!” he replied.
What about self determination?
What about it? It is not that patients get to dictate their care. If they are in the hospital, they need certain things. A patient cannot be allowed to starve to death simply because they pulled out their NG. Generally speaking, they do not want to be starved; they are just annoyed by the plastic tube in their nose. In the end, it is usually an all or nothing scenario – you get it all (by force if necessary) or you go home. If you cannot go home (if you could you probably would not be in the ICU in the first place) then you just sort of have to get it all. No one really has much choice in this regard. The patients do not, but the nurses and doctors do not really have much leeway either. Protocols have to be followed. In this way I have seen many a patient suddenly find themselves with a sterile drape over their heads and a large needle plunging into their neck (central line insertion) without so much as a “do you mind?” And the docs do not always get it on the first try. Sometimes it takes three different doctors and three different sites. Sometimes they cannot get it at all.
Then there are chemical restraints. Ativan tends to put patients to sleep. Particularly needy patients tend to get a lot of it because the nurses get fed up with them. What else can you really do for them anyways? When a patient makes an angry disturbance (banging on the bed for attention for instance), the nursing joke is to say “I think he is saying ‘give me ativan.’”
The hands down favorite drug of ICU nurses is Propofol. This milky white IV infusion induces a coma like state and can only be used on intubated patients. Propofol turns the nightmare patient into a turn-water’n-feed patient. I have heard one nurse refer to it as ‘the milk of the gods.’ Doctors also like propofol because the effect of it wears off in about ten minutes once it is turned off. A patient’s neurological status can thus be assessed briefly periodically whereas the patient who has received large doses of ativan may take days to wake up. There is a hitch though. Propofol is fat soluble, so if the patient is on it for more than a few days it absorbs into the tissues and may take weeks to clear after it is turned off.
One day I heard a commotion and went to the room of a newly arriving patient. Two teams of doctors and a large handful of nurses were settling the patient into his room. It was sort of an ad-hoc gathering. The patient did not really need much attention; people had just happened by and ended up in the room. The patient was tied at both wrists and both ankles. Four point restraints are illegal, but not uncommon. The patient was yelling, begging and pleading, “Please! Please! I do not want to die tied down like a dog! Please untie me! Please!” With the exception of me, everyone in the room was laughing at him. It was not malicious laughter it was more of the way people laugh at a child who is asking for the moon. Such a ridiculous suggestion! How could we possibly? The man was obviously crazy.
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11 comments:
Leo, Leo, Leo... I love your writing and your unfailing ability to remind me of why I left the ICU.
Why thank you. I definitely do have a leaning towards hospice. Various practical considerations keep me in the ICU, but I also feel I am needed and useful as a balance. What you do is very couargeous I think. Perhaps one day I will go that way.
"With the exception of me, everyone in the room was laughing at him. It was not malicious laughter it was more of the way people laugh at a child who is asking for the moon."
If I were a member of the family of that patient, and I saw the caregivers laughing at his plight, I would make it my personal business to see to it that each and every one of them lost their license to practice. IMO, people who are so totally lacking in compassion should not be allowed within ten kilometres of a sick person.
Oh, but I do not think they were lacking in compassion at all. The point is that the system is so dehumanizing that normally compasionate people lose their ability to feel. If all of your patients are tied up and struggling against their restraints every day, and you have accepted that this is necessary and good, it is not surprising that callousness develops. The system is flawed. The societal values are all wrong and this is the result. You may look for someone to blame, but that will not solve the problem. There is an illusion of compassionate care in a system that lacks compassion. There is a total disconnect between the perception of what healthcare offers and what is actually being provided. That is what I am writing about. It is what it is, not some TV fantasy or divine refuge. It is the way people die in a society that cannot face death. Unheard and unmourned.
Have given this post a shout out on my blog today!
Aaaaugh!! I came here by way of MormonMD's blog. I'm an ICU veteran of 8 years and I have NEVER ever EVER seen anyone in our ICU put into 4 point restraints. That is AWFUL! And a crowd of people laughing at a patient in such a situation? Dehumanizing and it should be punished. We use restraints as little as possible, though honestly, lately that is more so because the paperwork required to place and maintain them is such a pain in the rear that we try to come up with better ways to manage the situation.
Ah, scorn is such an easy and safe response. It also serves to enforce the silence about these kinds of things. The point is missed entirely, but let the record show that You and those you work with are better than and entirely different from me and the folks I have worked with.
The comments about the patient having no choice is rubbish. The patient decides what is or is not done to their bodies. I have an advanced directive prohibiting any form of naso-gastric intubation and if this is not followed regardless of the consequences, the offending person / people will be in court so fast for assault they wont know what hit them
Having wishes documented is good and can be helpful, but does not solve all problems. When a person has an endstage condition, there is really not much worry about being sued by them. The patient must have a strong and healthy advocate to enforce something like that. A pliable advocate can undo everything also. In general people have a much higher expectation of autonomy than is realistic. A failing body is the first prison and that leads to dependance. Dependance necessarily means loss of autonomy and from there the lines get more and more blurry. What if you have a stroke and can no longer swallow, but are otherwise intact? Should your caretakers just allow you to waste away? I would not necessarily oppose that, but most healthcare providers would consider that extreme, bordering on no-longer-competent-to-make-decisions. Most people are just not practically prepared for the real decisions that have to be made. I have seen things go in a wide spectrum of ways. Much depends on the variety of personalities involved. Not trying to give anyone anxiety, but do not think your little piece of paper is going to certainly protect you from going the way of all those fools who do not have one. In the end it really depends on the people you have around you, some things you may be able to control, and some things you have absolutely no control over.
That is absolute rubbish. The patient has total control over what happens to him. If a patient wishes to refuse ANYTHING he just refuses it and there is nothing that the medical "Professionals" can do about it. If they try forcing anything that has been refused they will be in court for false imprisonment and battery and will also be looking for a new career. It is about time patients realised doctors are not god. You decide what happens to you - noone else.
Also, there is a thing called an advanced directive which is legally binding and decides what can and cant be done to the patient. And don't worry, I have a really good lawyer with a department that specialises in suing medical people.
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